of cabbages and kings
I love your description of trying to "pin down time" only for the rug to be pulled out from under you again later because of a flare-up, etc. I'm autistic as well as chronically ill, and the dynamic nature of my illness has made me realize I need more tools in my informal "Coping with Change Toolbox," if that makes sense. Thanks for sharing your perspective. I wish more people knew about how time shifts with illness.